Monday, January 27, 2014
So, I've recently moved back home to live closer to my support system and I must say, it's definitely a challenge. I have lived on my own since 2004 and moving back into the house were I grew up made me feel as though I was taking steps backwards in my life. People tell me, "Nae, you have lupus, you couldn't help that you ended up in the hospital." .. Yeah, yeah... That's very true, but it's so hard being home because now everyone wants to diagnose me and tell me what I need to do and how I should do it to get better.
Okay people without lupus... If you don't listen to anything I tell you, listen to this: PLEASE DO NOT TELL A PERSON WITH LUPUS WHAT THEY SHOULD DO TO GET BETTER!!!!
Save yourself the breath and save us the time from listening!!! You telling us what you think would work only stresses us out and makes us want to throw rocks at you till you fall unconscious!!! Like seriously, don't you think we have already researched every possible thing we could do that could help us stop this everyday pain we experience. Welp, if you don't know... NOW YOU KNOW!!!!
Okay, let me calm down. *whew* I'm sorry.... I flashed back to how some people can be such idiots!! *ahem*.......
Now....Us lupies do understand that some of you come from a place of concern, and we appreciate that, but PLEASE believe that we don't want to be sick, and I am sure that we have ALREADY tried any and everything out there to our best ability to heal ourselves. What we need people for now is support! We understand that this is a disease that you may not understand and all you want to do is help (because who wants to see someone they love and care about in a constant pain) but don't act like we aren't trying to feel better, we are fighting every waking moment to get some kind of relief for ourselves.
Try sending a inspirational text, or calling to check up on us... Believe me, it does us wonders!! Just the fact that we cross your mind and you want to know the update on us gives us exactly what we need. I'm not sure how other lupies are and I can only speak for myself with this but the best thing someone can do for me is tell me that they are praying for me. Since I genuinely believe in the healing power of prayer, you are honestly giving me comfort by praying for me and everyone else that has this disease.
So please do me and us other lupie warriors a favor.... BE OUR FRIEND, NOT OUR DOCTOR!!