Saturday, November 14, 2015

Am I there yet?

*this picture is hilarious, and it's so true!*

Why make an appointment when what's really going to happen is that you're going to be waiting at least a hour past your appointment time in the waiting room?

What's worst is that, when you're finally out of the waiting room... the nurse will just slide you into another room, and you end up waiting ANOTHER 30 minutes or so.  

This seems to happen to me every time I go to a doctor's office. What makes it even more disappointing is when you FINALLY see the doctor, they're rushing you out the room like they've been waiting for you for the past 2 hours.

The whole situation just makes me sick to my stomach. I honestly think that on down the line, that doctor's tend to loose their humanity in their profession. They begin to look at their patients as dollar signs and not regular people. (I can only imagine how doctor's treat patients that are uninsured.)

I can remember when I was first diagnosed with lupus. I had questions. I was scared. I wanted to know how this disease would affect my life. When I finally got to talk to a doctor about it, she was rude and so inconsiderate. I could barely get any questions out before she decided to end the appointment herself and walk out the room.

I was hurt and angry.

I never like to wish bad upon people, but I honestly think that people don't understand what you're going through until they have to go through it themselves. If doctor's would put themselves in our shoes, and relate to us a little, I can bet that waiting room times would be shorter, and appointments with patients wouldn't be rushed and signed off as just some other patient.


Is it just me or do any of you guys see what the receptionist will do after your appointment? They overbook appointments, causing a huge delay between patients. (Which is very inconvenient for us lupies who schedule appointments during our lunch break because you can't take off work *ahem*) and they rarely have times available that are good for you. Don't ask me what would be a good day and time for me, and when I tell you, you're always booked? What's even the point!?!?

But anyways...

The whole fact of the matter is that getting to actually SEE the doctor and discuss symptoms and progress is a total journey within itself... so as I journey from waiting room, to another room, to another, I just have one question....

Am I there yet?

Friday, October 9, 2015

Feeling Beautiful..

Let's face it.

One of the hardest things for us lupies to do is get out of bed.
Let alone, fall asleep.

But when we finally get out the bed, we have to get dressed.

It takes every bit of my energy to brush my teeth, wash my face, shower, and do something remotely neat to my hair. After I've done all the basics, everything else just seems irrelevant. So, with that being said, it's very hard to feel beautiful when you have no energy to put into do all the work to make you look beautiful.

I have lost the confidence of feeling beautiful. I use to go to the nail shop every two weeks, maintain my weight (even just a little), I wasn't a make-up wearing girl, but I'd at least throw on some mascara. All of the things that I use to do to make me feel beautiful I just don't have the energy to do anymore.

Now some things are out of my control, for instance... I've lost hair with my chemotherapy and since I've been diagnosed, I've been on a pill called "prednisone". In a few blogs back, I discussed how hungry that pill makes me... now with hunger comes fat... then with fat comes not being able to fit in your regular clothes... THEN with not being able to fit in your regular clothes comes feeling fat and helpless. YUP! That's the stage I'm at now... FAT & HOPELESS.

Truthfully, I tried the diets that they have out there for lupus patients. I've completely given up red meats and pork, and I try not to eat after 7pm. My weakness is snacking. Throughout the day I snack on fattening things (*sigh* I need to do better) and I never exercise (*sigh* I so need to do better) it's just I put all my energy into going to work and when I get off work I am dead beat tired.  (Shout out to all us lupies that are getting up going to work! It's HARD!)

I also suffer from the butterfly rash that likes to show up during the worst times. And let's face it, we live in a society were you are completely judged on how you look. Can you imagine showing up for a job interview or going anywhere with this on your face..

I'm looking in the mirror every day noticing the change that my body is going through and it's the ugliest thing to see. I swear, I try to avoid all mirrors at all cost. I try to tell myself, "Girl, you are wearing that dress!", or "Girl, you're smokin' hot in that outfit!"..., it's really hard to have that confidence when in reality I know what I use to look and feel like before I was diagnosed.

What's a girl to do?